Skip to content
New issue

Have a question about this project? Sign up for a free GitHub account to open an issue and contact its maintainers and the community.

By clicking “Sign up for GitHub”, you agree to our terms of service and privacy statement. We’ll occasionally send you account related emails.

Already on GitHub? Sign in to your account

Adding text to Human clinical health data page #327

Merged
merged 14 commits into from
Aug 8, 2024

Conversation

martin-nc
Copy link

Adding the text for the page "Data description: Human clinical and health data". See the original Google Doc for reference.

@martin-nc martin-nc requested review from bedroesb and a team as code owners July 12, 2024 14:16

* For interoperability, standardisation is essential for maintaining consistency and accuracy in data representation, which can be achieved by utilising widely accepted vocabularies like ICD-10 and SNOMED CT.
* Tools like the Ontology Lookup Service (OLS) and NCBO BioPortal provide access to various biomedical ontologies, supporting standardisation efforts and improving data quality and utility. These resources help researchers and healthcare providers ensure that their data adheres to the highest standards of accuracy and consistency.
* [NCBO BioPortal](http://bioportal.bioontology.org/): NCBO BioPortal is an extensive repository and web-based platform that provides access to a wide array of biomedical ontologies and terminologies, enabling users to search, browse, and utilise these resources for research and data annotation purposes.
Copy link
Member

Choose a reason for hiding this comment

The reason will be displayed to describe this comment to others. Learn more.

Also in this section we might want to make use of our existing tools/add them to the tool list: https://github.com/martin-nc/infectious-diseases-toolkit/blob/martinc-hchd/_data/tool_and_resource_list.yml

Copy link
Author

Choose a reason for hiding this comment

The reason will be displayed to describe this comment to others. Learn more.

So I should add the Ontology Lookup Service (OLS) and NCBO BioPortal to the tool list (as they're not there)? I guess we don't add vocabularies like ICD-10?

I'll add links to HL7 and OMOP, since I see the links aren't in the text.

Copy link
Member

@bedroesb bedroesb Jul 31, 2024

Choose a reason for hiding this comment

The reason will be displayed to describe this comment to others. Learn more.

Reason why I brought it up was because we do have them in the RDMkit added as a tool:

- description: EMBL-EBI's web portal for finding ontologies
  id: ontology-lookup-service
  name: Ontology Lookup Service
  registry:
    biotools: ols
    fairsharing: Mkl9RR
    tess: Ontology Lookup Service
  url: https://www.ebi.ac.uk/ols/index
- description: A comprehensive repository of biomedical ontologies
  id: bioportal
  name: BioPortal
  registry:
    biotools: bioportal
    fairsharing: 4m97ah
    tess: BioPortal
  url: https://bioportal.bioontology.org
- description: Collaborative effort to develob interoperable ontologies for the biological sciences
  id: the-open-biological-and-biomedical-ontology-foundry
  name: The Open Biological and Biomedical Ontology (OBO) Foundry
  registry:
    fairsharing-coll: bsg-d001083
  url: http://obofoundry.org

Copy link
Member

Choose a reason for hiding this comment

The reason will be displayed to describe this comment to others. Learn more.

vocabularies we don't do normally indeed!

Copy link
Member

@bedroesb bedroesb left a comment

Choose a reason for hiding this comment

The reason will be displayed to describe this comment to others. Learn more.

I added some recommendations regarding tools!

@bedroesb bedroesb requested a review from a team July 15, 2024 11:42
@bedroesb bedroesb linked an issue Jul 15, 2024 that may be closed by this pull request
* The use of [blockchain technology in Estonia’s digital healthcare](https://e-estonia.com/blockchain-healthcare-estonian-experience/) system enhances the security of health data by creating tamper-proof records for every patient encounter.
* [The WHO’s Global Influenza Surveillance and Response System (GISRS)](https://www.who.int/initiatives/global-influenza-surveillance-and-response-system) provides standardised testing procedures and reagents to laboratories worldwide, ensuring the accuracy and reliability of influenza data globally.
* Data should be shared as openly and as rapidly as possible, for example by uploading SARS-CoV-2 sequence to [The European Nucleotide Archive (ENA)](https://www.ebi.ac.uk/ena/browser/home). ENA is an open, supported platform for the management, sharing, integration, archiving and dissemination of sequence data.
* [The GISAID](https://gisaid.org/) Data Science Initiative platform promotes the rapid sharing of data, from priority pathogens including influenza, hCoV-19, respiratory syncytial virus (RSV), hMpxV as well as arboviruses including chikungunya, dengue and zika. It includes genetic sequence and related clinical and epidemiological data associated with human viruses, and geographical as well as species-specific data associated with avian and other animal viruses. However, GISAID is much more restrictive on data reuse compared to ENA, for example.
Copy link
Member

Choose a reason for hiding this comment

The reason will be displayed to describe this comment to others. Learn more.

Same here, GISAID can be a tool {% tool "gisaid" %}

@martin-nc
Copy link
Author

@bedroesb Has that addressed everything now? I've added the tools to the tools file and put them in the page text.

@bedroesb bedroesb merged commit ee578bb into elixir-europe:main Aug 8, 2024
4 checks passed
Sign up for free to join this conversation on GitHub. Already have an account? Sign in to comment
Labels
None yet
Projects
None yet
Development

Successfully merging this pull request may close these issues.

Data description - Human clinical and health data
2 participants