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# Variable-level Metadata Submission | ||
# Variable-level Metadata Submission | ||
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The HEAL Data Platform includes two sources of variable-level metadata (VLMD): | ||
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* [**Data Dictionaries:**](#data-dictionaries) these describe each variable within a study's dataset | ||
* [**HEAL CDEs (Common Data Elements):**](#heal-cdes-common-data-elements) these are validated and structured questionnaires used by HEAL investigators conducting research with human participants to harmonize the data collected by different studies | ||
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!!! info | ||
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In order to submit any VLMD to the Platform, two conditions must be true: | ||
**1) The study must already be registered:** If your study is not yet registered, please see our instructions for how to register your study before submitting VLMD. | ||
<p align="center">[How to Register Your Study](../study-registration/index.md){ .md-button }</p> | ||
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**2) You must have access to submit VLMD:** If you are the person who registered your study, you automatically have access. If someone else registered your study, you can follow the instructions below to request access to submit VLMD. | ||
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<p align="center">[How to Request Access to Submit VLMD](vlmd_request_access.md){ .md-button }</p> | ||
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## Data Dictionaries | ||
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Data Dictionaries, which contain variable-level metadata, describe each variable within a dataset. Examples of variable-level attributes include the variable name, description (or variable label), type, format, terminology, and source. | ||
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In order to submit a study’s data dictionary to the Platform, the data dictionary must conform to the HEAL [variable-level metadata schema](https://github.com/HEAL/heal-metadata-schemas/tree/main/variable-level-metadata-schema). The following instructions will demonstrate how to use the HEAL Data Utilities' VLMD tool to help you generate a HEAL-compliant data dictionary from your dataset or existing data dictionary. | ||
In order to submit a study’s data dictionary to the Platform, the data dictionary must conform to the HEAL [variable-level metadata schema](https://github.com/HEAL/heal-metadata-schemas/tree/main/variable-level-metadata-schema). The following instructions will demonstrate how to use the HEAL Data Utilities' VLMD tool to help you generate a HEAL-compliant data dictionary from your dataset or existing data dictionary, and then submit it to the Platform. | ||
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1. [How to Generate a HEAL-compliant Data Dictionary](vlmd_healdata_utils.md) | ||
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2. [How to Submit a HEAL-compliant Data Dictionary](vlmd_submission.md) | ||
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!!! info | ||
## HEAL CDEs (Common Data Elements) | ||
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Note: in order to submit a data dictionary to the Platform, the study must first be registered. | ||
If you have not done so, please see our instructions on how to register your study. | ||
<p align="center">[How to Register Your Study](../study-registration/index.md){ .md-button }</p> | ||
HEAL CDEs are validated and structured questionnaires that include fields describing the human subject data collected, along with how the data was gathered, and how the response is represented in the dataset. HEAL investigators conducting research with human participants use CDEs to allow the data collected by different studies to be harmonized for further analyses. [*(To learn more about HEAL CDEs, visit this NIH page.)*](https://heal.nih.gov/data/common-data-elements) | ||
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To report the CDEs your study used to the Platform, follow the instructions on [this page](vlmd_submit_CDE.md). |
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# Request Access to Submit VLMD | ||
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!!! info | ||
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In order to submit a Data Dictionary to the Platform, **the study must already be registered.** If your study is not yet registered, please see our instructions for how to register your study before submitting VLMD. | ||
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<p align="center">[How to Register Your Study](../study-registration/index.md){ .md-button }</p> | ||
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--- | ||
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## Request Access to Submit Variable-level Metadata | ||
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### Login to the HEAL Data Platform | ||
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Click on the [Login button in the upper right corner](https://healdata.org/portal/login) to log in to the Platform. | ||
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<!-- If you want to play with sizing, you can use something like ![](../img/heal_login.png){: style="height:250px;width:534px"} --> | ||
![HEAL login screenshot](../img/heal_login.png) | ||
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### Find your study | ||
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From the [Discovery Page](https://healdata.org/portal/discovery), find the study for which you wish to request access to submit VLMD. | ||
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- Click on the study to open the Study Page | ||
- At the top of the Study Page, select `Request Access to Submit Variable-level Metadata` to navigate to the VLMD Submission Request Form. | ||
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![](../img/submit_vlmd_req_access_button.png) | ||
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!!! info | ||
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If you do not see `Request Access to Submit Variable-level Metadata`, see below for how to proceed. | ||
If you see: | ||
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- **`Login to...`** - you are not logged in. [Log in first](https://healdata.org/portal/login), then repeat the instructions above. | ||
- **`Request Access to Register This Study`** - your study is not yet registered. Follow these instructions to [request access and register your study](../study-registration/index.md). | ||
- **`Submit Variable-level Metadata`** - You already have access to submit VLMD. Proceed to [submit your data dictionary or CDEs](#submit-vlmd). | ||
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### Complete the VLMD Submission Request Form | ||
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- The field `Study Name - Grant Number` will already be filled in. | ||
- You will need to provide your name, your email address, institutional affiliation and role on the project/study. | ||
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![](../img/submit_vlmd_req_access_form.png) | ||
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After submitting, you will see a message indicating it was successfully sent. Within one business day, you will receive an email reporting that your request has been approved. When approved, you will then be able to submit VLMD (either a data dictionary or CDEs) to the Platform. | ||
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![](../img/submit_vlmd_req_access_popup.png) | ||
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## Submit VLMD | ||
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You are now ready to submit VLMD! Find instructions for submitting a Data Dictionary or reporting CDEs below: | ||
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* [Generate](vlmd_healdata_utils.md) and [Submit a HEAL-compliant Data Dictionary](vlmd_submission.md) | ||
* [Report CDEs](vlmd_submit_CDE.md) |
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# Submit HEAL CDEs | ||
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!!! info | ||
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In order to report your CDEs to the Platform, the following conditions must be true: | ||
**1) The study must already be registered:** If your study is not yet registered, please see our instructions for how to register your study before submitting VLMD. | ||
<p align="center">[How to Register Your Study](../study-registration/index.md){ .md-button }</p> | ||
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**2) You must have access to submit VLMD:** If you are the person who registered your study, you automatically have access. If someone else registered your study, you can follow the instructions below to request access to submit VLMD. | ||
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<p align="center">[How to Request Access to Submit VLMD](vlmd_request_access.md){ .md-button }</p> | ||
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## Login to the HEAL Data Platform | ||
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Click on the [Login button in the upper right corner](https://healdata.org/portal/login) to log in to the Platform. | ||
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![](../img/heal_login.png) | ||
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## Find Your Study | ||
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From the [Discovery Page](https://healdata.org/portal/discovery), find the study for which you wish to report CDEs. | ||
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- Click on the study to open the Study Page | ||
- At the top of the Study Page, select `Submit Variable-level Metadata` to navigate to the **Variable-level Metadata Submission Form**. | ||
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![](../img/submit_vlmd_submit_button.png) | ||
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!!! info | ||
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If you do not see `Submit Variable-level Metadata`, see below for how to proceed. | ||
If you see: | ||
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- **`Login to...`** - you are not logged in. [Log in first](https://healdata.org/portal/login), then repeat the instructions above. | ||
- **`Request Access to Submit Variable-level Metadata`** - you have not yet gotten access to submit VLMD. Follow these instructions to [request access to submit VLMD](vlmd_request_access.md). | ||
- **`Request Access to Register This Study`** - your study is not yet registered. Follow these instructions to [request access and register your study](../study-registration/index.md). | ||
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## Report CDEs | ||
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The VLMD submission form defaults to the Data Dictionary tab, so click the CDE tab (see box at top) to navigate to the CDE submission form. The `Study` field will already be filled in. | ||
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![](../img/vlmd_cde_submission_form_top.png) | ||
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Below the `Study` field is a checklist of core CDEs. Check the box for any you wish to associate with your study. As you select CDEs, they will populate in the box at the bottom of the section. | ||
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> If you or someone else on your team has already submitted CDEs, you will see these checked and listed in the box. You can update the CDE list by adding or removing CDEs and resubmitting the form. | ||
![](../img/vlmd_cde_submission_form_middle.png) | ||
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To add other CDEs not in the core list, you can click in the box beneath the core list and begin typing CDE codes or names to filter other CDEs that include the typed string (see the yellow highlighting). Click the CDE in the filtered list to add. | ||
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![](../img/vlmd_cde_submission_form_not-core.png) | ||
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To facilitate processing your submission, some administrative information is needed to allow HEAL Data Platform staff to contact you if necessary: | ||
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- First and Last name | ||
- E-mail address | ||
- *Note that this information is not stored on the Platform, but is simply needed to support you throughout the submission process.* | ||
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Submit your CDEs by clicking the `Submit CDEs` button. | ||
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![](../img/vlmd_cde_submission_form_bottom.png) | ||
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## Viewing the CDEs on Your Study Record | ||
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The CDEs will be updated on your study record on the Platform within 24 hours of your submission. You will then be able to see the CDEs listed in the facets under the study name. | ||
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![](../img/vlmd_cde_facets.png) | ||
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## Additional Help | ||
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If you have issues with a submission, or have a general inquiry, please contact us at [[email protected]](mailto:[email protected]). | ||
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