| title | filename |
|---|---|
ME/CFS Resources |
useful-resources.md |
What is ME/CFS?
Do I have ME/CFS?
- Simple Diagnostic Criteria (Institute of Medicine)
- Extended Diagnostic Criteria Quiz (International Consensus Criteria)
What's the latest in the ME/CFS world?
How can I help? How can I advocate?
Why so many names? Why not just CFS?
- Explanation of the naming -- ME or ME/CFS is preferred.
What are some online communities I can join?
- The Science for ME forum
- Facebook: 25% of ME (for severe people)
- Twitter: List of useful accounts
- Bluesky: ME/CFS Feed
- Reddit: ME/CFS Communities Directory
More Communities
* Reddit: [The r/cfs Community](https://www.reddit.com/r/cfs/s/FOHNXA7Cu1) Disclaimer: * DO NOT join the r/mecfs or r/cfsme communities on reddit. They are [owned by David Jameson](https://forums.phoenixrising.me/threads/the-moderator-of-reddit-r-cfsme-r-mecfs-pushes-cbt-and-brain-retraining-and-get-and-bans-you-if-you-say-something-about-it.90736/), a notorious psychologiser of the disease. * While generally okay, the r/cfs community has a few users who promote unproven treatments. * Discord: [The MercyME community](https://discord.gg/dQYyXjZ9) * Lemmy: [The lemmy.blahaj.zome community](https://lemmy.blahaj.zone/c/myalgicencephalomyelitis) * Sadly, this community is not very active, but Lemmy is quickly growing, so feel free to be the people who make it active :).Severe and Very Severe ME/CFS
- Hospital Admission vs Pallitative Care (scroll down; third video)
How to manage ME/CFS?
- ME Association "treatment" booklet (2024)
- Mayo Clinic Proceedings (2023)
- Germanophone Consensus (2024)
How do I measure/explain my level of Disability?
- The FUNCAP Questionnaire is specifically designed to measure disability due to PEM. You can take an online version here.
The Dark History of Psychologisation
- UK News Article Exploring it (2024)
- Documentary: The Tangled Story of ME/CFS (2021; 1 hour)